A while back, I made a decision to volunteer for The Tiny Light Foundation which is run by two fabulous women, Melissa Depape & Billie Depatie.
So long story short, I am a district manager of Ontario-where we match the Tiny Lights with photographers who have volunteered their time to participate and I am also a volunteer photographer.
I had the absolute pleasure of meeting a very beautiful family. They have a little boy named Jordan who was born a preemie at 24 weeks. He has cerebral palsy, severe hearing loss, cortical visual impairment, acid reflux and chronic lung disease.
BUT that is NOT who he is. It’s what he has…but not who he is or is defined by.
He’s a little boy with one of the most gorgeous smiles I have every seen! He is a loving little boy who is happy and loves life and is loved so much by his parents.
I cannot say it any better than his parents so I will quote them directly:
“The hardest thing is to try to make others see Jordan as we do. We love him unconditionally and would do anything for him. He can do many things, but it just takes him some time. I have a hard time when people disregard him that he cannot do anything. The feeling about how much love and patience a person can have. I didn’t think that I could love someone so much. He is the light of my life. How through everything, Jordan is so very happy and content. He loves life and has fun with it. I don’t want Jordan to feel that he is “broken” or that there is something wrong with him. We try to be very positive with him and give him the experiences of any typical 2 year old.”
They sum it up with this:
Life should be celebrated, not frowned on because these kids are so full of love.
I could not have said it better.
Enjoy your sneak!